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FHIR Osiris Implementation Guide
1.1.0 - trial-implementation

This page is part of the OSIRIS FHIR Implementation Guide (v1.1.0: Release) based on FHIR (HL7® FHIR® Standard) R4. This is the current published version. For a full list of available versions, see the Directory of published versions

Resource Profile: Family Cancer History

Official URL: https://ig-osiris.cancer.fr/ig/osiris/StructureDefinition/family-cancer-history Version: 1.1.0
Draft as of 2025-04-03 Computable Name: FamilyCancerHistory

History of cancer in an Onco Patient Family.

Usage:

  • This Resource Profile is not used by any profiles in this Implementation Guide

Formal Views of Profile Content

Description of Profiles, Differentials, Snapshots and how the different presentations work.

NomDrapeauxCard.TypeDescription et contraintesdoco
.. FamilyMemberHistory C 0..* FamilyMemberHistory Information about patient's relatives, relevant for patient
dom-2: If the resource is contained in another resource, it SHALL NOT contain nested Resources
dom-3: If the resource is contained in another resource, it SHALL be referred to from elsewhere in the resource or SHALL refer to the containing resource
dom-4: If a resource is contained in another resource, it SHALL NOT have a meta.versionId or a meta.lastUpdated
dom-5: If a resource is contained in another resource, it SHALL NOT have a security label
dom-6: A resource should have narrative for robust management
fhs-1: Can have age[x] or born[x], but not both
fhs-2: Can only have estimatedAge if age[x] is present
... implicitRules ?!Σ 0..1 uri A set of rules under which this content was created
ele-1: All FHIR elements must have a @value or children
... modifierExtension ?! 0..* Extension Extensions that cannot be ignored
ele-1: All FHIR elements must have a @value or children
ext-1: Must have either extensions or value[x], not both
... status ?!Σ 1..1 code partial | completed | entered-in-error | health-unknown
Binding: FamilyHistoryStatus (required): A code that identifies the status of the family history record.


ele-1: All FHIR elements must have a @value or children
... relationship Σ 1..1 CodeableConcept Relationship to the subject
Binding: Parentage Value Set (required)
ele-1: All FHIR elements must have a @value or children

doco Documentation for this format

Terminology Bindings

PathConformitéValueSetURI
FamilyMemberHistory.statusrequiredFamilyHistoryStatus
http://hl7.org/fhir/ValueSet/history-status|4.0.1
from the FHIR Standard
FamilyMemberHistory.relationshiprequiredParentage
https://ig-osiris.cancer.fr/ig/osiris/ValueSet/Parentage
from this IG

This structure is derived from FamilyMemberHistory

NomDrapeauxCard.TypeDescription et contraintesdoco
.. FamilyMemberHistory 0..* FamilyMemberHistory Information about patient's relatives, relevant for patient
... patient 1..1 Reference(Oncology Patient) Patient history is about
... relationship 1..1 CodeableConcept Relationship to the subject
Binding: Parentage Value Set (required)
... condition
.... code 1..1 CodeableConcept International code for the localization of the oncologic primary site
Binding: Topography Value Set (extensible)

doco Documentation for this format

Terminology Bindings (Differential)

PathConformitéValueSetURI
FamilyMemberHistory.relationshiprequiredParentage
https://ig-osiris.cancer.fr/ig/osiris/ValueSet/Parentage
from this IG
FamilyMemberHistory.condition.codeextensibleTopography
https://ig-osiris.cancer.fr/ig/osiris/ValueSet/Topography
from this IG
NomDrapeauxCard.TypeDescription et contraintesdoco
.. FamilyMemberHistory C 0..* FamilyMemberHistory Information about patient's relatives, relevant for patient
fhs-1: Can have age[x] or born[x], but not both
fhs-2: Can only have estimatedAge if age[x] is present
... id Σ 0..1 id Logical id of this artifact
... meta Σ 0..1 Meta Metadata about the resource
... implicitRules ?!Σ 0..1 uri A set of rules under which this content was created
... text 0..1 Narrative Text summary of the resource, for human interpretation
... contained 0..* Resource Contained, inline Resources
... extension 0..* Extension Additional content defined by implementations
... modifierExtension ?! 0..* Extension Extensions that cannot be ignored
... identifier Σ 0..* Identifier External Id(s) for this record
... instantiatesCanonical Σ 0..* canonical(PlanDefinition | Questionnaire | ActivityDefinition | Measure | OperationDefinition) Instantiates FHIR protocol or definition
... instantiatesUri Σ 0..* uri Instantiates external protocol or definition
... status ?!Σ 1..1 code partial | completed | entered-in-error | health-unknown
Binding: FamilyHistoryStatus (required): A code that identifies the status of the family history record.

... dataAbsentReason Σ 0..1 CodeableConcept subject-unknown | withheld | unable-to-obtain | deferred
Binding: FamilyHistoryAbsentReason (example): Codes describing the reason why a family member's history is not available.

... patient Σ 1..1 Reference(Oncology Patient) Patient history is about
... date Σ 0..1 dateTime When history was recorded or last updated
... name Σ 0..1 string The family member described
... relationship Σ 1..1 CodeableConcept Relationship to the subject
Binding: Parentage Value Set (required)
... sex Σ 0..1 CodeableConcept male | female | other | unknown
Binding: AdministrativeGender (extensible): Codes describing the sex assigned at birth as documented on the birth registration.

... born[x] C 0..1 (approximate) date of birth
.... bornPeriod Period
.... bornDate date
.... bornString string
... age[x] ΣC 0..1 (approximate) age
.... ageAge Age
.... ageRange Range
.... ageString string
... estimatedAge ΣC 0..1 boolean Age is estimated?
... deceased[x] Σ 0..1 Dead? How old/when?
.... deceasedBoolean boolean
.... deceasedAge Age
.... deceasedRange Range
.... deceasedDate date
.... deceasedString string
... reasonCode Σ 0..* CodeableConcept Why was family member history performed?
Binding: SNOMEDCTClinicalFindings (example): Codes indicating why the family member history was done.


... reasonReference Σ 0..* Reference(Condition | Observation | AllergyIntolerance | QuestionnaireResponse | DiagnosticReport | DocumentReference) Why was family member history performed?
... note 0..* Annotation General note about related person
... condition 0..* BackboneElement Condition that the related person had
.... id 0..1 string Unique id for inter-element referencing
.... extension 0..* Extension Additional content defined by implementations
.... modifierExtension ?!Σ 0..* Extension Extensions that cannot be ignored even if unrecognized
.... code 1..1 CodeableConcept International code for the localization of the oncologic primary site
Binding: Topography Value Set (extensible)
.... outcome 0..1 CodeableConcept deceased | permanent disability | etc.
Binding: ConditionOutcomeCodes (example): The result of the condition for the patient; e.g. death, permanent disability, temporary disability, etc.

.... contributedToDeath 0..1 boolean Whether the condition contributed to the cause of death
.... onset[x] 0..1 When condition first manifested
..... onsetAge Age
..... onsetRange Range
..... onsetPeriod Period
..... onsetString string
.... note 0..* Annotation Extra information about condition

doco Documentation for this format

Terminology Bindings

PathConformitéValueSetURI
FamilyMemberHistory.languagepreferredCommonLanguages
http://hl7.org/fhir/ValueSet/languages
from the FHIR Standard
Bindings Additionnels But
AllLanguages Binding Max
FamilyMemberHistory.statusrequiredFamilyHistoryStatus
http://hl7.org/fhir/ValueSet/history-status|4.0.1
from the FHIR Standard
FamilyMemberHistory.dataAbsentReasonexampleFamilyHistoryAbsentReason
http://hl7.org/fhir/ValueSet/history-absent-reason
from the FHIR Standard
FamilyMemberHistory.relationshiprequiredParentage
https://ig-osiris.cancer.fr/ig/osiris/ValueSet/Parentage
from this IG
FamilyMemberHistory.sexextensibleAdministrativeGender
http://hl7.org/fhir/ValueSet/administrative-gender
from the FHIR Standard
FamilyMemberHistory.reasonCodeexampleSNOMEDCTClinicalFindings
http://hl7.org/fhir/ValueSet/clinical-findings
from the FHIR Standard
FamilyMemberHistory.condition.codeextensibleTopography
https://ig-osiris.cancer.fr/ig/osiris/ValueSet/Topography
from this IG
FamilyMemberHistory.condition.outcomeexampleConditionOutcomeCodes
http://hl7.org/fhir/ValueSet/condition-outcome
from the FHIR Standard

This structure is derived from FamilyMemberHistory

Résumé

Structures

This structure refers to these other structures:

Key Elements View

NomDrapeauxCard.TypeDescription et contraintesdoco
.. FamilyMemberHistory C 0..* FamilyMemberHistory Information about patient's relatives, relevant for patient
dom-2: If the resource is contained in another resource, it SHALL NOT contain nested Resources
dom-3: If the resource is contained in another resource, it SHALL be referred to from elsewhere in the resource or SHALL refer to the containing resource
dom-4: If a resource is contained in another resource, it SHALL NOT have a meta.versionId or a meta.lastUpdated
dom-5: If a resource is contained in another resource, it SHALL NOT have a security label
dom-6: A resource should have narrative for robust management
fhs-1: Can have age[x] or born[x], but not both
fhs-2: Can only have estimatedAge if age[x] is present
... implicitRules ?!Σ 0..1 uri A set of rules under which this content was created
ele-1: All FHIR elements must have a @value or children
... modifierExtension ?! 0..* Extension Extensions that cannot be ignored
ele-1: All FHIR elements must have a @value or children
ext-1: Must have either extensions or value[x], not both
... status ?!Σ 1..1 code partial | completed | entered-in-error | health-unknown
Binding: FamilyHistoryStatus (required): A code that identifies the status of the family history record.


ele-1: All FHIR elements must have a @value or children
... relationship Σ 1..1 CodeableConcept Relationship to the subject
Binding: Parentage Value Set (required)
ele-1: All FHIR elements must have a @value or children

doco Documentation for this format

Terminology Bindings

PathConformitéValueSetURI
FamilyMemberHistory.statusrequiredFamilyHistoryStatus
http://hl7.org/fhir/ValueSet/history-status|4.0.1
from the FHIR Standard
FamilyMemberHistory.relationshiprequiredParentage
https://ig-osiris.cancer.fr/ig/osiris/ValueSet/Parentage
from this IG

Differential View

This structure is derived from FamilyMemberHistory

NomDrapeauxCard.TypeDescription et contraintesdoco
.. FamilyMemberHistory 0..* FamilyMemberHistory Information about patient's relatives, relevant for patient
... patient 1..1 Reference(Oncology Patient) Patient history is about
... relationship 1..1 CodeableConcept Relationship to the subject
Binding: Parentage Value Set (required)
... condition
.... code 1..1 CodeableConcept International code for the localization of the oncologic primary site
Binding: Topography Value Set (extensible)

doco Documentation for this format

Terminology Bindings (Differential)

PathConformitéValueSetURI
FamilyMemberHistory.relationshiprequiredParentage
https://ig-osiris.cancer.fr/ig/osiris/ValueSet/Parentage
from this IG
FamilyMemberHistory.condition.codeextensibleTopography
https://ig-osiris.cancer.fr/ig/osiris/ValueSet/Topography
from this IG

Snapshot View

NomDrapeauxCard.TypeDescription et contraintesdoco
.. FamilyMemberHistory C 0..* FamilyMemberHistory Information about patient's relatives, relevant for patient
fhs-1: Can have age[x] or born[x], but not both
fhs-2: Can only have estimatedAge if age[x] is present
... id Σ 0..1 id Logical id of this artifact
... meta Σ 0..1 Meta Metadata about the resource
... implicitRules ?!Σ 0..1 uri A set of rules under which this content was created
... text 0..1 Narrative Text summary of the resource, for human interpretation
... contained 0..* Resource Contained, inline Resources
... extension 0..* Extension Additional content defined by implementations
... modifierExtension ?! 0..* Extension Extensions that cannot be ignored
... identifier Σ 0..* Identifier External Id(s) for this record
... instantiatesCanonical Σ 0..* canonical(PlanDefinition | Questionnaire | ActivityDefinition | Measure | OperationDefinition) Instantiates FHIR protocol or definition
... instantiatesUri Σ 0..* uri Instantiates external protocol or definition
... status ?!Σ 1..1 code partial | completed | entered-in-error | health-unknown
Binding: FamilyHistoryStatus (required): A code that identifies the status of the family history record.

... dataAbsentReason Σ 0..1 CodeableConcept subject-unknown | withheld | unable-to-obtain | deferred
Binding: FamilyHistoryAbsentReason (example): Codes describing the reason why a family member's history is not available.

... patient Σ 1..1 Reference(Oncology Patient) Patient history is about
... date Σ 0..1 dateTime When history was recorded or last updated
... name Σ 0..1 string The family member described
... relationship Σ 1..1 CodeableConcept Relationship to the subject
Binding: Parentage Value Set (required)
... sex Σ 0..1 CodeableConcept male | female | other | unknown
Binding: AdministrativeGender (extensible): Codes describing the sex assigned at birth as documented on the birth registration.

... born[x] C 0..1 (approximate) date of birth
.... bornPeriod Period
.... bornDate date
.... bornString string
... age[x] ΣC 0..1 (approximate) age
.... ageAge Age
.... ageRange Range
.... ageString string
... estimatedAge ΣC 0..1 boolean Age is estimated?
... deceased[x] Σ 0..1 Dead? How old/when?
.... deceasedBoolean boolean
.... deceasedAge Age
.... deceasedRange Range
.... deceasedDate date
.... deceasedString string
... reasonCode Σ 0..* CodeableConcept Why was family member history performed?
Binding: SNOMEDCTClinicalFindings (example): Codes indicating why the family member history was done.


... reasonReference Σ 0..* Reference(Condition | Observation | AllergyIntolerance | QuestionnaireResponse | DiagnosticReport | DocumentReference) Why was family member history performed?
... note 0..* Annotation General note about related person
... condition 0..* BackboneElement Condition that the related person had
.... id 0..1 string Unique id for inter-element referencing
.... extension 0..* Extension Additional content defined by implementations
.... modifierExtension ?!Σ 0..* Extension Extensions that cannot be ignored even if unrecognized
.... code 1..1 CodeableConcept International code for the localization of the oncologic primary site
Binding: Topography Value Set (extensible)
.... outcome 0..1 CodeableConcept deceased | permanent disability | etc.
Binding: ConditionOutcomeCodes (example): The result of the condition for the patient; e.g. death, permanent disability, temporary disability, etc.

.... contributedToDeath 0..1 boolean Whether the condition contributed to the cause of death
.... onset[x] 0..1 When condition first manifested
..... onsetAge Age
..... onsetRange Range
..... onsetPeriod Period
..... onsetString string
.... note 0..* Annotation Extra information about condition

doco Documentation for this format

Terminology Bindings

PathConformitéValueSetURI
FamilyMemberHistory.languagepreferredCommonLanguages
http://hl7.org/fhir/ValueSet/languages
from the FHIR Standard
Bindings Additionnels But
AllLanguages Binding Max
FamilyMemberHistory.statusrequiredFamilyHistoryStatus
http://hl7.org/fhir/ValueSet/history-status|4.0.1
from the FHIR Standard
FamilyMemberHistory.dataAbsentReasonexampleFamilyHistoryAbsentReason
http://hl7.org/fhir/ValueSet/history-absent-reason
from the FHIR Standard
FamilyMemberHistory.relationshiprequiredParentage
https://ig-osiris.cancer.fr/ig/osiris/ValueSet/Parentage
from this IG
FamilyMemberHistory.sexextensibleAdministrativeGender
http://hl7.org/fhir/ValueSet/administrative-gender
from the FHIR Standard
FamilyMemberHistory.reasonCodeexampleSNOMEDCTClinicalFindings
http://hl7.org/fhir/ValueSet/clinical-findings
from the FHIR Standard
FamilyMemberHistory.condition.codeextensibleTopography
https://ig-osiris.cancer.fr/ig/osiris/ValueSet/Topography
from this IG
FamilyMemberHistory.condition.outcomeexampleConditionOutcomeCodes
http://hl7.org/fhir/ValueSet/condition-outcome
from the FHIR Standard

This structure is derived from FamilyMemberHistory

Résumé

Structures

This structure refers to these other structures:

 

Other representations of profile: CSV, Excel, Schematron