FHIR Osiris Implementation Guide
1.1.0 - trial-implementation

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## Resource Profile: Family Cancer History

Official URL: https://ig-osiris.cancer.fr/ig/osiris/StructureDefinition/family-cancer-history | Version: 1.1.0
Draft as of 2025-04-03 | Computable Name: FamilyCancerHistory

History of cancer in an Onco Patient Family.

Usage:

- This Resource Profile is not used by any profiles in this Implementation Guide

### Formal Views of Profile Content

Description of Profiles, Differentials, Snapshots and how the different presentations work.

- Key Elements Table
- Differential Table
- Snapshot Table
- Statistics/References
- All

Nom | Drapeaux | Card. | Type | Description et contraintes
--- | --- | --- | --- | ---
FamilyMemberHistory | C | 0..* | FamilyMemberHistory | Information about patient's relatives, relevant for patient dom-2: If the resource is contained in another resource, it SHALL NOT contain nested Resources dom-3: If the resource is contained in another resource, it SHALL be referred to from elsewhere in the resource or SHALL refer to the containing resource dom-4: If a resource is contained in another resource, it SHALL NOT have a meta.versionId or a meta.lastUpdated dom-5: If a resource is contained in another resource, it SHALL NOT have a security label dom-6: A resource should have narrative for robust management fhs-1: Can have age[x] or born[x], but not both fhs-2: Can only have estimatedAge if age[x] is present
implicitRules | ?!Σ | 0..1 | uri | A set of rules under which this content was created ele-1: All FHIR elements must have a @value or children
modifierExtension | ?! | 0..* | Extension | Extensions that cannot be ignored ele-1: All FHIR elements must have a @value or children ext-1: Must have either extensions or value[x], not both
status | ?!Σ | 1..1 | code | partial | completed | entered-in-error | health-unknown Binding: FamilyHistoryStatus (required): A code that identifies the status of the family history record. ele-1: All FHIR elements must have a @value or children
patient | Σ | 1..1 | Reference(Oncology Patient) | Patient history is about ele-1: All FHIR elements must have a @value or children
relationship | Σ | 1..1 | CodeableConcept | Relationship to the subject Binding: Parentage Value Set (required) ele-1: All FHIR elements must have a @value or children
Documentation for this format

#### Terminology Bindings

Path | Conformité | ValueSet | URI
FamilyMemberHistory.status | required | FamilyHistoryStatus `http://hl7.org/fhir/ValueSet/history-status|4.0.1` from the FHIR Standard
FamilyMemberHistory.relationship | required | Parentage `https://ig-osiris.cancer.fr/ig/osiris/ValueSet/Parentage` from this IG

This structure is derived from FamilyMemberHistory

Nom | Drapeaux | Card. | Type | Description et contraintes
--- | --- | --- | --- | ---
FamilyMemberHistory |  | 0..* | FamilyMemberHistory | Information about patient's relatives, relevant for patient
patient |  | 1..1 | Reference(Oncology Patient) | Patient history is about
relationship |  | 1..1 | CodeableConcept | Relationship to the subject Binding: Parentage Value Set (required)
condition |  |  |  |
code |  | 1..1 | CodeableConcept | International code for the localization of the oncologic primary site Binding: Topography Value Set (extensible)
Documentation for this format

#### Terminology Bindings (Differential)

Path | Conformité | ValueSet | URI
FamilyMemberHistory.relationship | required | Parentage `https://ig-osiris.cancer.fr/ig/osiris/ValueSet/Parentage` from this IG
FamilyMemberHistory.condition.code | extensible | Topography `https://ig-osiris.cancer.fr/ig/osiris/ValueSet/Topography` from this IG

Nom | Drapeaux | Card. | Type | Description et contraintes
--- | --- | --- | --- | ---
FamilyMemberHistory | C | 0..* | FamilyMemberHistory | Information about patient's relatives, relevant for patient fhs-1: Can have age[x] or born[x], but not both fhs-2: Can only have estimatedAge if age[x] is present
id | Σ | 0..1 | id | Logical id of this artifact
meta | Σ | 0..1 | Meta | Metadata about the resource
implicitRules | ?!Σ | 0..1 | uri | A set of rules under which this content was created
language |  | 0..1 | code | Language of the resource content Binding: CommonLanguages (preferred): A human language.
Bindings Additionnels | But
AllLanguages | Binding Max
text |  | 0..1 | Narrative | Text summary of the resource, for human interpretation
contained |  | 0..* | Resource | Contained, inline Resources
extension |  | 0..* | Extension | Additional content defined by implementations
modifierExtension | ?! | 0..* | Extension | Extensions that cannot be ignored
identifier | Σ | 0..* | Identifier | External Id(s) for this record
instantiatesCanonical | Σ | 0..* | canonical(PlanDefinition | Questionnaire | ActivityDefinition | Measure | OperationDefinition) | Instantiates FHIR protocol or definition
instantiatesUri | Σ | 0..* | uri | Instantiates external protocol or definition
status | ?!Σ | 1..1 | code | partial | completed | entered-in-error | health-unknown Binding: FamilyHistoryStatus (required): A code that identifies the status of the family history record.
dataAbsentReason | Σ | 0..1 | CodeableConcept | subject-unknown | withheld | unable-to-obtain | deferred Binding: FamilyHistoryAbsentReason (example): Codes describing the reason why a family member's history is not available.
patient | Σ | 1..1 | Reference(Oncology Patient) | Patient history is about
date | Σ | 0..1 | dateTime | When history was recorded or last updated
name | Σ | 0..1 | string | The family member described
relationship | Σ | 1..1 | CodeableConcept | Relationship to the subject Binding: Parentage Value Set (required)
sex | Σ | 0..1 | CodeableConcept | male | female | other | unknown Binding: AdministrativeGender (extensible): Codes describing the sex assigned at birth as documented on the birth registration.
born[x] | C | 0..1 |  | (approximate) date of birth
bornPeriod |  |  | Period |
bornDate |  |  | date |
bornString |  |  | string |
age[x] | Σ C | 0..1 |  | (approximate) age
ageAge |  |  | Age |
ageRange |  |  | Range |
ageString |  |  | string |
estimatedAge | Σ C | 0..1 | boolean | Age is estimated?
deceased[x] | Σ | 0..1 |  | Dead? How old/when?
deceasedBoolean |  |  | boolean |
deceasedAge |  |  | Age |
deceasedRange |  |  | Range |
deceasedDate |  |  | date |
deceasedString |  |  | string |
reasonCode | Σ | 0..* | CodeableConcept | Why was family member history performed? Binding: SNOMEDCTClinicalFindings (example): Codes indicating why the family member history was done.
reasonReference | Σ | 0..* | Reference(Condition | Observation | AllergyIntolerance | QuestionnaireResponse | DiagnosticReport | DocumentReference) | Why was family member history performed?
note |  | 0..* | Annotation | General note about related person
condition |  | 0..* | BackboneElement | Condition that the related person had
id |  | 0..1 | string | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
modifierExtension | ?!Σ | 0..* | Extension | Extensions that cannot be ignored even if unrecognized
code |  | 1..1 | CodeableConcept | International code for the localization of the oncologic primary site Binding: Topography Value Set (extensible)
outcome |  | 0..1 | CodeableConcept | deceased | permanent disability | etc. Binding: ConditionOutcomeCodes (example): The result of the condition for the patient; e.g. death, permanent disability, temporary disability, etc.
contributedToDeath |  | 0..1 | boolean | Whether the condition contributed to the cause of death
onset[x] |  | 0..1 |  | When condition first manifested
onsetAge |  |  | Age |
onsetRange |  |  | Range |
onsetPeriod |  |  | Period |
onsetString |  |  | string |
note |  | 0..* | Annotation | Extra information about condition
Documentation for this format

#### Terminology Bindings

Path | Conformité | ValueSet | URI
FamilyMemberHistory.language | preferred | CommonLanguages `http://hl7.org/fhir/ValueSet/languages` from the FHIR Standard
Bindings Additionnels | But
AllLanguages | Binding Max
FamilyMemberHistory.status | required | FamilyHistoryStatus `http://hl7.org/fhir/ValueSet/history-status|4.0.1` from the FHIR Standard
FamilyMemberHistory.dataAbsentReason | example | FamilyHistoryAbsentReason `http://hl7.org/fhir/ValueSet/history-absent-reason` from the FHIR Standard
FamilyMemberHistory.relationship | required | Parentage `https://ig-osiris.cancer.fr/ig/osiris/ValueSet/Parentage` from this IG
FamilyMemberHistory.sex | extensible | AdministrativeGender `http://hl7.org/fhir/ValueSet/administrative-gender` from the FHIR Standard
FamilyMemberHistory.reasonCode | example | SNOMEDCTClinicalFindings `http://hl7.org/fhir/ValueSet/clinical-findings` from the FHIR Standard
FamilyMemberHistory.condition.code | extensible | Topography `https://ig-osiris.cancer.fr/ig/osiris/ValueSet/Topography` from this IG
FamilyMemberHistory.condition.outcome | example | ConditionOutcomeCodes `http://hl7.org/fhir/ValueSet/condition-outcome` from the FHIR Standard

This structure is derived from FamilyMemberHistory

Résumé

Structures

This structure refers to these other structures:

- Oncology Patient (https://ig-osiris.cancer.fr/ig/osiris/StructureDefinition/onco-patient)

Key Elements View

Nom | Drapeaux | Card. | Type | Description et contraintes
--- | --- | --- | --- | ---
FamilyMemberHistory | C | 0..* | FamilyMemberHistory | Information about patient's relatives, relevant for patient dom-2: If the resource is contained in another resource, it SHALL NOT contain nested Resources dom-3: If the resource is contained in another resource, it SHALL be referred to from elsewhere in the resource or SHALL refer to the containing resource dom-4: If a resource is contained in another resource, it SHALL NOT have a meta.versionId or a meta.lastUpdated dom-5: If a resource is contained in another resource, it SHALL NOT have a security label dom-6: A resource should have narrative for robust management fhs-1: Can have age[x] or born[x], but not both fhs-2: Can only have estimatedAge if age[x] is present
implicitRules | ?!Σ | 0..1 | uri | A set of rules under which this content was created ele-1: All FHIR elements must have a @value or children
modifierExtension | ?! | 0..* | Extension | Extensions that cannot be ignored ele-1: All FHIR elements must have a @value or children ext-1: Must have either extensions or value[x], not both
status | ?!Σ | 1..1 | code | partial | completed | entered-in-error | health-unknown Binding: FamilyHistoryStatus (required): A code that identifies the status of the family history record. ele-1: All FHIR elements must have a @value or children
patient | Σ | 1..1 | Reference(Oncology Patient) | Patient history is about ele-1: All FHIR elements must have a @value or children
relationship | Σ | 1..1 | CodeableConcept | Relationship to the subject Binding: Parentage Value Set (required) ele-1: All FHIR elements must have a @value or children
Documentation for this format

#### Terminology Bindings

Path | Conformité | ValueSet | URI
FamilyMemberHistory.status | required | FamilyHistoryStatus `http://hl7.org/fhir/ValueSet/history-status|4.0.1` from the FHIR Standard
FamilyMemberHistory.relationship | required | Parentage `https://ig-osiris.cancer.fr/ig/osiris/ValueSet/Parentage` from this IG

Differential View

This structure is derived from FamilyMemberHistory

Nom | Drapeaux | Card. | Type | Description et contraintes
--- | --- | --- | --- | ---
FamilyMemberHistory |  | 0..* | FamilyMemberHistory | Information about patient's relatives, relevant for patient
patient |  | 1..1 | Reference(Oncology Patient) | Patient history is about
relationship |  | 1..1 | CodeableConcept | Relationship to the subject Binding: Parentage Value Set (required)
condition |  |  |  |
code |  | 1..1 | CodeableConcept | International code for the localization of the oncologic primary site Binding: Topography Value Set (extensible)
Documentation for this format

#### Terminology Bindings (Differential)

Path | Conformité | ValueSet | URI
FamilyMemberHistory.relationship | required | Parentage `https://ig-osiris.cancer.fr/ig/osiris/ValueSet/Parentage` from this IG
FamilyMemberHistory.condition.code | extensible | Topography `https://ig-osiris.cancer.fr/ig/osiris/ValueSet/Topography` from this IG

Snapshot View

Nom | Drapeaux | Card. | Type | Description et contraintes
--- | --- | --- | --- | ---
FamilyMemberHistory | C | 0..* | FamilyMemberHistory | Information about patient's relatives, relevant for patient fhs-1: Can have age[x] or born[x], but not both fhs-2: Can only have estimatedAge if age[x] is present
id | Σ | 0..1 | id | Logical id of this artifact
meta | Σ | 0..1 | Meta | Metadata about the resource
implicitRules | ?!Σ | 0..1 | uri | A set of rules under which this content was created
language |  | 0..1 | code | Language of the resource content Binding: CommonLanguages (preferred): A human language.
Bindings Additionnels | But
AllLanguages | Binding Max
text |  | 0..1 | Narrative | Text summary of the resource, for human interpretation
contained |  | 0..* | Resource | Contained, inline Resources
extension |  | 0..* | Extension | Additional content defined by implementations
modifierExtension | ?! | 0..* | Extension | Extensions that cannot be ignored
identifier | Σ | 0..* | Identifier | External Id(s) for this record
instantiatesCanonical | Σ | 0..* | canonical(PlanDefinition | Questionnaire | ActivityDefinition | Measure | OperationDefinition) | Instantiates FHIR protocol or definition
instantiatesUri | Σ | 0..* | uri | Instantiates external protocol or definition
status | ?!Σ | 1..1 | code | partial | completed | entered-in-error | health-unknown Binding: FamilyHistoryStatus (required): A code that identifies the status of the family history record.
dataAbsentReason | Σ | 0..1 | CodeableConcept | subject-unknown | withheld | unable-to-obtain | deferred Binding: FamilyHistoryAbsentReason (example): Codes describing the reason why a family member's history is not available.
patient | Σ | 1..1 | Reference(Oncology Patient) | Patient history is about
date | Σ | 0..1 | dateTime | When history was recorded or last updated
name | Σ | 0..1 | string | The family member described
relationship | Σ | 1..1 | CodeableConcept | Relationship to the subject Binding: Parentage Value Set (required)
sex | Σ | 0..1 | CodeableConcept | male | female | other | unknown Binding: AdministrativeGender (extensible): Codes describing the sex assigned at birth as documented on the birth registration.
born[x] | C | 0..1 |  | (approximate) date of birth
bornPeriod |  |  | Period |
bornDate |  |  | date |
bornString |  |  | string |
age[x] | Σ C | 0..1 |  | (approximate) age
ageAge |  |  | Age |
ageRange |  |  | Range |
ageString |  |  | string |
estimatedAge | Σ C | 0..1 | boolean | Age is estimated?
deceased[x] | Σ | 0..1 |  | Dead? How old/when?
deceasedBoolean |  |  | boolean |
deceasedAge |  |  | Age |
deceasedRange |  |  | Range |
deceasedDate |  |  | date |
deceasedString |  |  | string |
reasonCode | Σ | 0..* | CodeableConcept | Why was family member history performed? Binding: SNOMEDCTClinicalFindings (example): Codes indicating why the family member history was done.
reasonReference | Σ | 0..* | Reference(Condition | Observation | AllergyIntolerance | QuestionnaireResponse | DiagnosticReport | DocumentReference) | Why was family member history performed?
note |  | 0..* | Annotation | General note about related person
condition |  | 0..* | BackboneElement | Condition that the related person had
id |  | 0..1 | string | Unique id for inter-element referencing
extension |  | 0..* | Extension | Additional content defined by implementations
modifierExtension | ?!Σ | 0..* | Extension | Extensions that cannot be ignored even if unrecognized
code |  | 1..1 | CodeableConcept | International code for the localization of the oncologic primary site Binding: Topography Value Set (extensible)
outcome |  | 0..1 | CodeableConcept | deceased | permanent disability | etc. Binding: ConditionOutcomeCodes (example): The result of the condition for the patient; e.g. death, permanent disability, temporary disability, etc.
contributedToDeath |  | 0..1 | boolean | Whether the condition contributed to the cause of death
onset[x] |  | 0..1 |  | When condition first manifested
onsetAge |  |  | Age |
onsetRange |  |  | Range |
onsetPeriod |  |  | Period |
onsetString |  |  | string |
note |  | 0..* | Annotation | Extra information about condition
Documentation for this format

#### Terminology Bindings

Path | Conformité | ValueSet | URI
FamilyMemberHistory.language | preferred | CommonLanguages `http://hl7.org/fhir/ValueSet/languages` from the FHIR Standard
Bindings Additionnels | But
AllLanguages | Binding Max
FamilyMemberHistory.status | required | FamilyHistoryStatus `http://hl7.org/fhir/ValueSet/history-status|4.0.1` from the FHIR Standard
FamilyMemberHistory.dataAbsentReason | example | FamilyHistoryAbsentReason `http://hl7.org/fhir/ValueSet/history-absent-reason` from the FHIR Standard
FamilyMemberHistory.relationship | required | Parentage `https://ig-osiris.cancer.fr/ig/osiris/ValueSet/Parentage` from this IG
FamilyMemberHistory.sex | extensible | AdministrativeGender `http://hl7.org/fhir/ValueSet/administrative-gender` from the FHIR Standard
FamilyMemberHistory.reasonCode | example | SNOMEDCTClinicalFindings `http://hl7.org/fhir/ValueSet/clinical-findings` from the FHIR Standard
FamilyMemberHistory.condition.code | extensible | Topography `https://ig-osiris.cancer.fr/ig/osiris/ValueSet/Topography` from this IG
FamilyMemberHistory.condition.outcome | example | ConditionOutcomeCodes `http://hl7.org/fhir/ValueSet/condition-outcome` from the FHIR Standard

This structure is derived from FamilyMemberHistory

Résumé

Structures

This structure refers to these other structures:

- Oncology Patient (https://ig-osiris.cancer.fr/ig/osiris/StructureDefinition/onco-patient)

Other representations of profile: CSV, Excel, Schematron